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Needs of families of children with cerebral palsy in Bangladesh: A qualitative study
Author(s) -
Nuri Reshma Parvin,
Aldersey Heather Michelle,
Ghahari Setareh
Publication year - 2019
Publication title -
child: care, health and development
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.832
H-Index - 82
eISSN - 1365-2214
pISSN - 0305-1862
DOI - 10.1111/cch.12624
Subject(s) - cerebral palsy , rehabilitation , special needs , qualitative research , needs assessment , psychology , medicine , psychiatry , physical therapy , sociology , social science
Purpose Families of children with disabilities often have needs related to the care of their child with a disability. Although there has been extensive exploration of family needs in high‐income contexts, there is little known about this issue in low and middle‐income countries like Bangladesh. In this study, we explored the needs of families of children with cerebral palsy in Bangladesh. Such understanding is important as it will help to improve services for children with disabilities and their families. Methods We used a qualitative approach and interviewed 20 family members of children with cerebral palsy who visited the Centre for the Rehabilitation of the Paralysed, Bangladesh. We thematically analyzed data from semistructured interviews. Results Five different themes were found on needs of families with children with disabilities: (a) financial needs, (b) needs for disability‐related services, (c) needs for family and community cohesion, (d) informational needs, and (e) emotional needs. Participants overwhelmingly reported that financial needs were their highest priority. Conclusion Needs of families of children with disabilities must be considered in rehabilitation services to improve children's outcomes. Further studies are required to explore needs of families of children with disabilities who do not have access to rehabilitation services.