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Building capacity for rigorous controlled trials in autism: the importance of measuring treatment adherence
Author(s) -
McConachie H.,
FletcherWatson S.
Publication year - 2015
Publication title -
child: care, health and development
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.832
H-Index - 82
eISSN - 1365-2214
pISSN - 0305-1862
DOI - 10.1111/cch.12185
Subject(s) - autism , intervention (counseling) , randomized controlled trial , psychology , parent training , reliability (semiconductor) , clinical psychology , applied psychology , medicine , developmental psychology , medical education , psychiatry , surgery , power (physics) , physics , quantum mechanics
Research groups across E urope have been networking to share information and ideas about research on preschool children with autism. The paper describes preliminary work to develop capacity for future multi‐site randomized controlled trials of early intervention, with a specific focus on the need to measure treatment adherence where parents deliver therapy. The paper includes a review of randomized and controlled studies of parent‐mediated early intervention from two sources, a recent C ochrane C ollaboration review and a mapping of E uropean early intervention studies in autism published since 2002. The data extracted focused on methods for describing parent adherence, that is, how and to what extent parents carry out the strategies taught them by therapists. Less than half of the 32 studies reviewed included any measure of parent adherence. Only seven included a direct assessment method. The challenges of developing pan‐ E uropean early intervention evaluation studies are discussed, including choice of intervention model and of important outcomes, the need for translation of measurement tools and achievement of joint training to reliability of assessors. Measurement of parent–child interaction style and of adherence to strategies taught need further study.

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