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Sexual function and health‐related quality of life in women with classic bladder exstrophy
Author(s) -
Deans Rebecca,
Liao LihMei,
Wood Dan,
Woodhouse Christopher,
Creighton Sarah M.
Publication year - 2015
Publication title -
bju international
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.773
H-Index - 148
eISSN - 1464-410X
pISSN - 1464-4096
DOI - 10.1111/bju.12811
Subject(s) - medicine , sexual function , quality of life (healthcare) , observational study , normative , referral , psychological intervention , reproductive health , retrospective cohort study , family medicine , gynecology , surgery , psychiatry , nursing , population , philosophy , environmental health , epistemology
Objective To investigate sexual function and quality of life in adolescent and adult women with classic bladder exstrophy ( BE ). Materials and Methods A two‐part observational cross‐sectional study with a questionnaire arm and a retrospective case review arm was performed. The study was undertaken in a centre providing a tertiary referral gynaecology and urology service. Outcomes were sexual function and quality‐of‐life scores. Results A total of 44 patients with BE were identified from departmental databases and included in the study, of whom 28 (64%) completed postal questionnaires. Sexual function scores and quality‐of‐life visual analogue scales were significantly poorer compared with normative data. Conclusions Bladder exstrophy has a detrimental psychological impact on women. In future, methodical multidisciplinary paediatric follow‐up research will help to identify predictors of better and worse adolescent and adult outcomes. Development and evaluation of cost‐effective psychological interventions to target specific problems is also warranted.