Premium
Development and validation of the Satisfaction with Treatment for Pain Questionnaire (STPQ) among patients with sickle cell disease
Author(s) -
Elander James,
Bij Deepali,
Kapadi Romaana,
Schofield Malcolm B.,
Osias Arlene,
Khalid Nosheen,
Kaya Banu,
Telfer Paul
Publication year - 2019
Publication title -
british journal of haematology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.907
H-Index - 186
eISSN - 1365-2141
pISSN - 0007-1048
DOI - 10.1111/bjh.16015
Subject(s) - medicine , construct validity , patient satisfaction , convergent validity , physical therapy , content validity , disease , confirmatory factor analysis , clinical psychology , family medicine , psychometrics , internal consistency , nursing , structural equation modeling , statistics , mathematics
Summary A brief measure of patient satisfaction with treatment for pain is needed to help improve the treatment of painful episodes caused by sickle cell disease (SCD), especially during and after the transition from paediatric to adult care. Focus groups of 28 adolescent and adult patients were consulted about the content, clarity and relevance of 30 potential items, resulting in an 18‐item version. This was validated by analysing questionnaire responses from 120 patients aged 12–53 years. Confirmatory factor analysis and item analysis indicated five subscales with high internal reliability: ‘Communication and Involvement’ (6 items, α = 0·87); ‘Respect and Dignity’ (3 items, α = 0·82); ‘Pain Control’ (3 items, α = 0·91); ‘Staff Attitudes and Behaviour’ (4 items, α = 0·88); and ‘Overall Satisfaction’ (2 items, α = 0·85) plus a Total Satisfaction score (18 items, α = 0·96). High negative correlations with the Picker Patient Experience Questionnaire, a measure of problem experiences, indicated good convergent validity. Lower satisfaction scores among patients aged over 18 years, those admitted via the emergency department, those treated by non‐specialist hospital staff, and those reporting more breakthrough pain indicated good concurrent validity. The questionnaire provides a convenient brief measure that can be used to inform and evaluate improvements in healthcare for adolescent and adult patients with SCD, and could potentially be adapted for other painful conditions.