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Effectiveness of gastrostomy for improving nutritional status and quality of life in patients with epidermolysis bullosa: a systematic review
Author(s) -
Zidorio A.P.C.,
Dutra E.S.,
Castro L.C.G.,
Carvalho K.M.B.
Publication year - 2018
Publication title -
british journal of dermatology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 2.304
H-Index - 179
eISSN - 1365-2133
pISSN - 0007-0963
DOI - 10.1111/bjd.16139
Subject(s) - epidermolysis bullosa , medicine , quality of life (healthcare) , dermatology , gastrostomy , intensive care medicine , pediatrics , surgery , nursing
Summary Individuals with epidermolysis bullosa (EB) may present with a broad spectrum of growth impairment and multiorgan disorders, with compromised nutritional status and quality of life. The provision of nutrients through a gastrostomy tube may minimize EB ‐related malnourishment but may also result in skin injuries and infections. In this systematic review we consider the current evidence about the effectiveness of gastrostomy in restoring nutritional status and improving quality of life in patients with EB . Seven studies ( n = 146) met selection criteria and patients ranged in age from 6 weeks to 33 years of age. Although it is not a risk‐free procedure, the placement of a gastrostomy tube is a feasible and safe alternative to provide nutritional support and to improve the quality of life of patients.