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Medical staff tend to underestimate the quality of life in children and adolescents with inflammatory bowel disease
Author(s) -
Kim Seung,
Park Sowon,
Kang Yunkoo,
Kwon Namkyung,
Koh Hong
Publication year - 2019
Publication title -
acta paediatrica
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.772
H-Index - 115
eISSN - 1651-2227
pISSN - 0803-5253
DOI - 10.1111/apa.14498
Subject(s) - medicine , inflammatory bowel disease , quality of life (healthcare) , intraclass correlation , disease , physical therapy , pediatrics , family medicine , psychometrics , nursing , clinical psychology
Aim We evaluated how well medical staff or parents understood patients with inflammatory bowel disease ( IBD ) by comparing their evaluation of the patients’ quality of life (QoL) with the patients’ self‐reported QoL. Methods This study was carried out at Severance Children's Hospital in Seoul, Korea, in 2017. The children with IBD were recruited from August 2017 to December 2017, and they had a mean age of 16.4 (range 9.3–18.9) years. We asked the 64 children (38 boys), 58 mothers, 16 fathers, three physicians and one IBD nurse to answer the IMPACT ‐ III questionnaire, which measures QoL, and compared the scores. Results The intraclass correlation coefficient of the total IMPACT ‐ III score was highest for the patient and their father (0.824) and then for the patient and their mother (0.689), physician (0.625) and IBD nurse (0.499). Parents and medical staff thought the patients’ QoL was lower than the patients themselves. The differences in the IMPACT ‐ III scores of the patients were −10.09 ± 17.86 for physicians, −9.87 ± 15.80 for mothers, −5.72 ± 17.04 for nurses and −3.81 ± 11.82 for fathers. Conclusion Parents and medical staff showed some correlation with the QoL documented by adolescent IBD patients, but tended to underestimate the levels.