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Quality predictors of parental satisfaction after birth of infants with life‐limiting conditions
Author(s) -
Wool Charlotte,
Kain Victoria J.,
Mendes Joana,
Carter Brian S.
Publication year - 2018
Publication title -
acta paediatrica
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.772
H-Index - 115
eISSN - 1651-2227
pISSN - 0803-5253
DOI - 10.1111/apa.13980
Subject(s) - medicine , limiting , compassion , context (archaeology) , psychological intervention , patient satisfaction , quality (philosophy) , family medicine , nursing , mechanical engineering , paleontology , philosophy , epistemology , political science , law , biology , engineering
Abstract Aim This study examines parental satisfaction with care received in the context of a life‐limiting foetal diagnosis and subsequent birth. Methods Survey methods were utilised to embed the Quality Indicators ( QI ) and Parental Satisfaction of Perinatal Palliative Care Instrument in a survey: ‘The Voice of Parents’. Results The web‐based survey had a final sample of N = 405 parent responders. Overall, parents reported satisfaction with care (80.2%; n = 393). Parents satisfied with care reported higher agreement with quality indicator items for all subscales. In total, 17 items from the 41‐item instrument revealed the ability to predict higher parental satisfaction when particular QI are reported. Conclusion This study has led to credible insights into parental satisfaction with care given after the birth of an infant with a life‐limiting condition. The findings contribute to development of a model with a good fit in ascertaining the importance of compassion, unhurried provider–patient communication and bereavement interventions.