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The Paediatric Cataract Register (PECARE): an overview of operated childhood cataract in Sweden and Denmark
Author(s) -
Magnusson Gunilla,
Haargaard Birgitte,
Basit Saima,
Lundvall Anna,
Nyström Alf,
Rosensvärd Annika,
Tornqvist Kristina
Publication year - 2018
Publication title -
acta ophthalmologica
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.534
H-Index - 87
eISSN - 1755-3768
pISSN - 1755-375X
DOI - 10.1111/aos.13497
Subject(s) - medicine , danish , pediatrics , epidemiology , cataract surgery , ophthalmology , philosophy , linguistics
Aim To report basic epidemiological data concerning surgically treated childhood cataract in Sweden and Denmark. Methods Data were derived from the Paediatric Cataract Register ( PECARE ), a binational, web‐based surgical register representing Sweden and Denmark. All children operated before 8 years of age between 1 January 2007 and 31 December 2013 were included. Age‐specific prevalence per 100 000 population was calculated. Results A total 574 operations in 213 boys (51.7%) and 199 girls (48.3%), altogether 412 children, were registered, the vast majority ( n = 395/412; 95.9%) being individuals with congenital/infantile cataract. Of these 412, a total of 294 (147 boys and 147 girls) were Swedish and 118 (66 boys and 52 girls) were Danish. The age‐specific prevalence of operated cataract in Sweden was 31/100 000 and in Denmark 28/100 000. In 454 of 574 eyes (79.1%), the cataract was dense. Altogether, 266 of 574 (46.3%) were operated during the first year of life, 193 during the first 12 weeks representing 33.6% of all operations. A primary intraocular lens ( IOL ) implantation was done in altogether 411 of 574 eyes (71,6%). In total, 210 unilateral cataract operations (210/574; 36.6%) were performed. Persistent fetal vasculature ( PFV ) was present in 64 of 193 (33.1%) of those with a congenital unilateral cataract. In 84 individuals (84/395; 21.3%) with congenital or infantile cataract, a coexisting disorder was found. Conclusion The age‐specific binational prevalence of operated congenital/infantile cataract in Sweden and Denmark is 30/100 000. About half of the operations are performed within the first year of life, one‐third within the first 3 months. In our study population, a primary IOL was implanted in the majority of cases.