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The N orwegian M ultiple S clerosis R egistry and B iobank
Author(s) -
Myhr K.M.,
Grytten N.,
Aarseth J. H.
Publication year - 2012
Publication title -
acta neurologica scandinavica
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.967
H-Index - 95
eISSN - 1600-0404
pISSN - 0001-6314
DOI - 10.1111/ane.12030
Subject(s) - biobank , norwegian , multiple sclerosis , medicine , disease , epidemiology , disease registry , family medicine , pathology , bioinformatics , immunology , philosophy , linguistics , biology
Objevtives Multiple sclerosis is a chronic inflammatory disease of the central nervous system with unknown cause and without any curable treatment. Research aiming at defining the pathogenesis of the disease is therefore needed. Methods The N orwegian M ultiple S clerosis R egistry and B iobank has been established for systematic collection of clinical and epidemiological data as well as biological samples. Data collection is based on informed consent from the individual patients and recordings by the treating neurologists. Results All researchers have, by application, access to data and biological samples from the Norwegian Multiple Sclerosis Registry and Biobank. Conclusion By this combined effort from both patients and health care personnel, the R egistry and B iobank aims to facilitate research for improved understanding of disease mechanisms and improved health care in multiple sclerosis.