z-logo
Premium
From the G othenburg cohort to the S wedish multiple sclerosis registry
Author(s) -
Andersen O.
Publication year - 2012
Publication title -
acta neurologica scandinavica
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.967
H-Index - 95
eISSN - 1600-0404
pISSN - 0001-6314
DOI - 10.1111/ane.12023
Subject(s) - cohort , incidence (geometry) , epidemiology , medicine , cohort study , cancer registry , family medicine , pathology , physics , optics
An overview of prevalence and incidence studies performed in S wedish centres is provided, showing improving coverage and methodology, notably the development in G othenburg of the representative incidence cohort design. A common database for major S wedish centres was established in 1995, implementing the terminology of predictors from the G othenburg cohort. By 2001, these databases were merged into the web‐based national multiple sclerosis ( MS ) registry, which has had an ever‐increasing coverage, although with still moderate data density. The registry now contains records on 13,000 S wedish patients with MS . It has the status of a national quality registry and exerts nation‐wide pharmacological surveillance. In addition, it has been, and is being, used in nearly 100 scientific studies, including large epidemiological and genetic projects.

This content is not available in your region!

Continue researching here.

Having issues? You can contact us here