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From the G othenburg cohort to the S wedish multiple sclerosis registry
Author(s) -
Andersen O.
Publication year - 2012
Publication title -
acta neurologica scandinavica
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.967
H-Index - 95
eISSN - 1600-0404
pISSN - 0001-6314
DOI - 10.1111/ane.12023
Subject(s) - cohort , incidence (geometry) , epidemiology , medicine , cohort study , cancer registry , family medicine , pathology , physics , optics
An overview of prevalence and incidence studies performed in S wedish centres is provided, showing improving coverage and methodology, notably the development in G othenburg of the representative incidence cohort design. A common database for major S wedish centres was established in 1995, implementing the terminology of predictors from the G othenburg cohort. By 2001, these databases were merged into the web‐based national multiple sclerosis ( MS ) registry, which has had an ever‐increasing coverage, although with still moderate data density. The registry now contains records on 13,000 S wedish patients with MS . It has the status of a national quality registry and exerts nation‐wide pharmacological surveillance. In addition, it has been, and is being, used in nearly 100 scientific studies, including large epidemiological and genetic projects.