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Findings and recommendations from the organ transplant caregiver initiative: Moving clinical care and research forward
Author(s) -
Jesse Michelle T.,
Hansen Beverly,
Bruschwein Heather,
Chen Gloria,
terah Camilla,
Peipert John Devin,
Dew Mary Amanda,
Thomas Charlie,
Ortega Adilia D.,
Balliet Wendy,
Ladin Keren,
Lerret Stacee,
Yaldo Alexander,
Coco Tiffany,
Mallea Jorge
Publication year - 2021
Publication title -
american journal of transplantation
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 2.89
H-Index - 188
eISSN - 1600-6143
pISSN - 1600-6135
DOI - 10.1111/ajt.16315
Subject(s) - medicine , intensive care medicine , organ transplantation , transplantation
Lay‐caregivers are essential to the continuum of care in adult organ transplantation. However, we have a limited understanding of the experiences, exigencies, and outcomes associated with lay‐caregiving for organ transplant patients. While much discussion and debate has focused on caregiver requirements in relation to transplant candidate selection, little focus has been given to understanding the needs of caregivers themselves. In response to this, the Organ Transplant Caregiver Initiative was created, and a meeting was held during October 6–7, 2019. Transplant healthcare professionals, researchers, and lay‐caregivers discussed the experiences, educational needs, existing research, and research recommendations to improve the experience of lay‐caregivers for adult organ transplant patients. In this report, we summarize the Organ Transplant Caregiver Initiative and meeting findings, providing a preliminary action plan to improve education, research, and advocacy for organ transplant caregivers.