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Seeking new answers to old questions about public reporting of transplant program performance in the United States
Author(s) -
Kasiske Bertram L.,
Wey Andrew,
Salkowski Nicholas,
Zaun David,
Schaffhausen Cory R.,
Israni Ajay K.,
Snyder Jon J.
Publication year - 2019
Publication title -
american journal of transplantation
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 2.89
H-Index - 188
eISSN - 1600-6143
pISSN - 1600-6135
DOI - 10.1111/ajt.15051
Subject(s) - medicine , listing (finance) , metric (unit) , presentation (obstetrics) , medical education , medical emergency , family medicine , operations management , surgery , business , engineering , finance
The Scientific Registry of Transplant Recipients (SRTR) is mandated by the National Organ Transplant Act, the Final Rule, and the SRTR contract with the Health Resources and Services Administration to report program‐specific information on the performance of transplant programs. Following a consensus conference in 2012, SRTR developed a new version of the public website to improve public reporting of often complex metrics, including changing from a 3‐tier to a 5‐tier summary metric for first‐year posttransplant survival. After its release in December 2016, the new presentation was moved to a “beta” website to allow collection of additional feedback. SRTR made further improvements and released a new beta website in May 2018. In response to feedback, SRTR added 5‐tier summaries for standardized waitlist mortality and deceased donor transplant rate ratios, along with an indicator of which metric most affects survival after listing. Presentation of results was made more understandable with input from patients and families from surveys and focus groups. Room for improvement remains, including continuing to make the data more useful to patients, deciding what additional data elements should be collected to improve risk adjustment, and developing new metrics that better reflect outcomes most relevant to patients.