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How do people with dementia and family carers value dementia‐specific quality of life states? An explorative “Think Aloud” study
Author(s) -
Ratcliffe Julie,
Hutchinson Claire,
Milte Rachel,
Nguyen KimHuong,
Welch Alyssa,
Caporale Tessa,
Corlis Megan,
Comans Tracy
Publication year - 2019
Publication title -
australasian journal on ageing
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.63
H-Index - 34
eISSN - 1741-6612
pISSN - 1440-6381
DOI - 10.1111/ajag.12646
Subject(s) - dementia , valuation (finance) , quality of life (healthcare) , psychology , set (abstract data type) , family caregivers , gerontology , value (mathematics) , medicine , disease , computer science , psychotherapist , finance , pathology , machine learning , economics , programming language
Objective To investigate the decision‐making processes applied by people with dementia and family carers participating in using health economic approaches to value dementia‐specific quality of life states. Methods People with dementia (n = 13) and family carers (n = 14) participated in valuing quality of life states using two health economic approaches: Discrete Choice Experiment ( DCE ) and Best Worst Scaling ( BWS ). Participants were encouraged to explain their reasoning using a “Think Aloud” approach. Results People with dementia and family carers adopted a range of decision‐making strategies including “anchoring” the presented states against current quality of life, or simplifying the decision‐making by focusing on the sub‐set of attributes deemed most important. Overall, there was strong evidence of task engagement for BWS and DCE . Conclusions Health economic valuation approaches can be successfully applied with people with dementia and family carers. These data can inform the assessment of benefits from their perspectives for incorporation within economic evaluation.