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Protecting Medical Privacy: Challenges in the Age of Genetic Information
Author(s) -
Alpert Sheri A.
Publication year - 2003
Publication title -
journal of social issues
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.618
H-Index - 122
eISSN - 1540-4560
pISSN - 0022-4537
DOI - 10.1111/1540-4560.00066
Subject(s) - sophistication , confidentiality , internet privacy , medical record , medical information , personally identifiable information , information privacy , medical care , genetic testing , genetic engineering , business , public relations , computer security , computer science , political science , medicine , sociology , family medicine , knowledge management , genetics , social science , radiology , biology , gene
This article examines the privacy issues that arise from the convergence of two trends: the computerization of medical records, and the increasingly detailed level of personal genetic information that will potentially be placed within the electronic medical record. The article discusses the privacy and public policy implications for medical care, group identity, and familial relationships arising from the transition toward electronic medical records which will increasingly contain highly detailed genetic information. As such, the article focuses on the confidentiality of the electronic medical record, the increasing prevalence and sophistication of genetic testing and analysis, and the implications of electronic genetic information .