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Measuring what really matters: Why developing patient‐reported outcome measures in Duchenne muscular dystrophy should involve patients and caregivers
Author(s) -
Friedrich Sebastian,
Reeskau Gudrun,
Sproß Joachim,
Langer Thorsten
Publication year - 2025
Publication title -
developmental medicine and child neurology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.658
H-Index - 143
eISSN - 1469-8749
pISSN - 0012-1622
DOI - 10.1111/dmcn.16225
Subject(s) - duchenne muscular dystrophy , muscular dystrophy , medicine , outcome (game theory) , physical medicine and rehabilitation , physical therapy , psychology , mathematical economics , mathematics
This commentary is on the original article by Lowes et al. on pages 918–929 of this issue.