Open AccessReal-world Site Experiences With GeneMatch
Author(s) -
Shoshana H. Bardach,
Jessica B. Langbaum,
Carey S. Kebodeaux,
Gregory A. Jicha
Publication year - 2020
Publication title -
alzheimer disease and associated disorders
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.213
H-Index - 95
eISSN - 1546-4156
pISSN - 0893-0341
DOI - 10.1097/wad.0000000000000425
Subject(s) - outreach , context (archaeology) , demographics , disease registry , medicine , gerontology , disease , geography , pathology , political science , demography , archaeology , sociology , law
Registries have been proposed as a novel way to accelerate targeted recruitment for Alzheimer disease prevention clinical trials. However, there are limited data regarding registry effectiveness at accelerating recruitment and enrollment in research opportunities. This manuscript explores one site's experience with GeneMatch, a novel genetic registry for Alzheimer disease research.