Open AccessEDS‐related Feeding Difficulties
Author(s) -
Kilgore Alexandra L.,
Hawa Juliette T.,
Liu Edwin,
BelkindGerson Jaime,
Santucci Kourtney Kuss
Publication year - 2022
Publication title -
jpgn reports
Language(s) - English
Resource type - Journals
ISSN - 2691-171X
DOI - 10.1097/pg9.0000000000000147
Subject(s) - medicine , nausea , bloating , psychological intervention , physical therapy , choking , intervention (counseling) , intensive care medicine , surgery , nursing , anatomy
Feeding difficulties due to functional gastrointestinal (GI) symptoms (i.e., nausea, pain, and bloating) are well described in patients with hypermobile‐type Ehlers‐Danlos Syndrome. These symptoms are particularly difficult to treat when there is comorbid dysautonomia, usually manifesting as postural orthostatic tachycardia syndrome. Here, we describe a successful trial of multidisciplinary rehabilitative interventions to avoid placement of a surgical feeding tube in such a patient. Main components of intervention were intensive pelvic floor physiotherapy and biofeedback, occupational therapy focused on coping with feeding‐related symptoms, psychology support, and medications targeting histamine blockade and enhancing intestinal motility.