Open AccessPilot study of educational interventions for pediatric hematopoietic stem cell sibling donors to increase knowledge of donation and transplantation procedures
Author(s) -
Lori Wiener,
Richard Childs,
Nirali N. Shah
Publication year - 2019
Publication title -
journal of psychosocial oncology research and practice
Language(s) - English
Resource type - Journals
ISSN - 2637-5974
DOI - 10.1097/or9.0000000000000004
Subject(s) - workbook , donation , sibling , medicine , psychological intervention , transplantation , intervention (counseling) , comprehension , stem cell , family medicine , hematopoietic stem cell , hematopoietic stem cell transplantation , psychology , surgery , haematopoiesis , developmental psychology , nursing , linguistics , philosophy , business , accounting , biology , economics , genetics , economic growth
Siblings are frequently identified as a tissue match for patients with malignant and nonmalignant diseases and are selected to donate hematopoietic stem cells (HSC). Research on preparing siblings donors for stem cell donation is limited. Even after donation procedures are explained, siblings have been found to have difficulty understanding the information and may experience anxiety, particularly amongst younger donors. No prospective studies examining educational tools and transplant knowledge in sibling stem cell donors are currently available. This pilot study assessed donor comprehension of HSC donation procedures and compared knowledge prior to and post an educational intervention.