Open Access“We Want to Sign It, But We Can't Do It”
Author(s) -
Hsin-Tzu Sophie Lee,
ChiaLing Yang,
Ting-Ru Chen,
Sei-Ven Leu,
Wen-Yu Hu
Publication year - 2021
Publication title -
journal of hospice and palliative nursing
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.457
H-Index - 23
eISSN - 1539-0705
pISSN - 1522-2179
DOI - 10.1097/njh.0000000000000793
Subject(s) - directive , thematic analysis , sign (mathematics) , psychology , context (archaeology) , face (sociological concept) , content analysis , nursing , qualitative research , medicine , sociology , mathematical analysis , social science , paleontology , mathematics , computer science , biology , programming language
This study aimed to clarify the experiences of family members of older adult residents regarding the signing of an advance directive in the context of a Chinese culture. Twenty family members of older residents in a long-term care facility participated in face-to-face interviews, and the researchers conducted a thematic analysis of observation field notes and interview transcripts. A content analysis of the interviews revealed 4 themes concerning the refusal to sign advance directives: resident decision, group decision, not entitled to decide, and random decision. Health providers may serve as mediators and pass on the residents' views regarding their end-of-life care to their families after holding discussions with residents and their families separately to ensure that an agreeable decision regarding the modes and objectives of EOL care is reached and that such a decision respects the right of the patient to choose.