Open AccessHealth Care Transition for Adolescents and Young Adults With Pediatric‐Onset Liver Disease and Transplantation
Author(s) -
Vittorio Jennifer,
KosmachPark Beverly,
King Lindsay Y.,
Fischer Ryan,
Fredericks Emily M.,
Ng Vicky L.,
Narang Amrita,
Rasmussen Sara,
Bucuvalas John
Publication year - 2023
Publication title -
journal of pediatric gastroenterology and nutrition
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.206
H-Index - 131
eISSN - 1536-4801
pISSN - 0277-2116
DOI - 10.1097/mpg.0000000000003560
Subject(s) - medicine , hepatology , liver transplantation , transplantation , pediatric gastroenterology , liver disease , adult care , health care , public health , young adult , position paper , intensive care medicine , multidisciplinary approach , family medicine , medical home , pediatrics , disease , nursing , pathology , social science , sociology , economics , economic growth , primary care
Advances in medical therapies and liver transplantation have resulted in a greater number of pediatric patients reaching young adulthood. However, there is an increased risk for medical complications and morbidity surrounding transfer from pediatric to adult hepatology and transplant services. Health care transition (HCT) is the process of moving from a child/family‐centered model of care to an adult or patient‐centered model of health care. Successful HCT requires a partnership between pediatric and adult providers across all disciplines resulting in a transition process that does not end at the time of transfer but continues throughout early adulthood. Joint consensus guidelines in collaboration with the American Society of Transplantation are presented to facilitate the adoption of a structured, multidisciplinary approach to transition planning utilizing The Six Core Elements of Health Care Transition TM for use by both pediatric and adult specialists. This paper provides guidance and seeks support for the implementation of an HCT program which spans across both pediatric and adult hepatology and transplant centers.