Open AccessTransition of Care from Pediatric to Adult Care in Eosinophilic Esophagitis
Author(s) -
Robinson Jane,
Furuta Glenn T.,
Hadker Nandini,
Kolev Irana,
Williams James,
Juethner Salomé,
Falk Gary W.
Publication year - 2021
Publication title -
journal of pediatric gastroenterology and nutrition
Language(s) - English
Resource type - Journals
eISSN - 1536-4801
pISSN - 0277-2116
DOI - 10.1097/mpg.0000000000003303
Subject(s) - eosinophilic esophagitis , medicine , young adult , health care , adult care , disease , family medicine , gerd , patient education , pediatrics , gerontology , economics , economic growth , reflux
Eosinophilic esophagitis (EoE) is a chronic immune‐mediated disease. Patients with a childhood diagnosis require ongoing disease management in adulthood; however, knowledge of the patient experience during pediatric to adult healthcare transition is lacking. Here, an online survey captured patient perceptions of the challenges faced by patients with EoE in the United States during transition to adult healthcare, and which resources, if implemented, could better support transition. Of 67 respondents, 91% (n = 61) were under adult care at the time of survey completion. Aspects that respondents struggled with most included meal planning, food shopping, cooking/finding foods that did not exacerbate their condition, and knowledge of insurance coverage. Although most respondents reported confidence in having the knowledge to manage their EoE, almost half of the respondents worried about managing their condition in the future. Resources detailing diet, medication and insurance management strategies could support the transition to adult healthcare for patients with EoE.