Open AccessProductivity Loss Among Parents of Children With Inflammatory Bowel Diseases in Relation to Disease Activity and Patient's Quality of Life
Author(s) -
Stawowczyk Ewa,
Kawalec Paweł,
KowalskaDuplaga Kinga,
Mossakowska Małgorzata
Publication year - 2020
Publication title -
journal of pediatric gastroenterology and nutrition
Language(s) - English
Resource type - Journals
eISSN - 1536-4801
pISSN - 0277-2116
DOI - 10.1097/mpg.0000000000002801
Subject(s) - medicine , presenteeism , quality of life (healthcare) , absenteeism , disease , inflammatory bowel disease , ulcerative colitis , physical therapy , productivity , work productivity , sick leave , pediatrics , nursing , management , economics , macroeconomics
Objectives: To assess the productivity losses among the parents of children with inflammatory bowel diseases (IBDs) in Poland and their relationship with disease activity and the patient's quality of life. Methods: A questionnaire‐based self‐reported Internet survey was conducted among the parents of patients (0‐‐17 years old) with a diagnosis of ulcerative colitis (UC) or Crohn disease (CD). Data on indirect and direct costs, general patient characteristics, disease activity, pharmacological treatment, and children's quality of life measured with the Pediatric Quality of Life Inventory (PedsQL) were collected. Results: A total of 113 completed questionnaires were obtained. Remission was reported in 58.6% of cases. Severe disease was more common in patients with UC (7.3% vs 2.9%). The mean reduction in parents’ daily activities was 40% (range: 0%–100%). The mean (SD) reduction of parents’ work productivity because of absenteeism was 21% (0.27), and the mean cost was €902.77 (1136.90) per year per parent. The mean (SD) productivity loss at paid work of a working parent (presenteeism) was 35% (0.31) and the mean (SD) cost was €1125.13 (1121.16) per year per parent. The PedsQL score was significantly higher among patients with inactive than with active disease. Conclusions: A significant difference between patients with inactive and active disease was observed for the total reduction of parent's work productivity and the PedsQL score. A negative correlation was observed for indirect costs and the PedsQL score for the whole study population; better health‐related quality of life among patients in remission was revealed.