Open AccessA Multilevel Approach to Stakeholder Engagement in the Formulation of a Clinical Data Research Network
Author(s) -
Alaina Boyer,
Alecia Malin Fair,
Yvonne Joosten,
Rowena J Dolor,
Neely A. Williams,
Lisa Sherden,
Sarah Stallings,
Duane T. Smoot,
Consuelo H. Wilkins
Publication year - 2018
Publication title -
medical care
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.632
H-Index - 178
eISSN - 1537-1948
pISSN - 0025-7079
DOI - 10.1097/mlr.0000000000000778
Subject(s) - stakeholder engagement , stakeholder , corporate governance , public relations , community engagement , knowledge management , business , medical education , medicine , political science , computer science , finance
To ensure meaningful engagement of stakeholders (patients, clinicians, and communities) in developing the Mid-South Clinical Data Research Network (MS-CDRN), we implemented a comprehensive, multilevel approach: (1) identify barriers to involving stakeholders in governance, network design, and implementation; (2) engage stakeholders in priority setting and research topic generation; (3) develop strategies to fully integrate stakeholders in CDRN governance and oversight; and (4) solicit guidance on patient-centered tools and strategies for recruiting research participants.