Open AccessEvaluating the Balance Between Privacy and Access in Digital Information Sharing
Author(s) -
Sarah J. Beesley,
Alex Powell,
Danielle Groat,
Jorie Butler,
Ramona O. Hopkins,
Ronen Rozenblum,
Hanan Aboumatar,
Alison Butler,
Jeremy Sugarman,
Leslie P. Francis,
Samuel Brown
Publication year - 2021
Publication title -
critical care medicine
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 3.002
H-Index - 271
eISSN - 1530-0293
pISSN - 0090-3493
DOI - 10.1097/ccm.0000000000005234
Subject(s) - medicine , the internet , family medicine , family member , psychological intervention , population , confidentiality , information sharing , health care , medical emergency , internet privacy , nursing , environmental health , computer security , world wide web , computer science , economics , economic growth
Access to personal health records in an ICU by persons involved in the patient's care (referred to broadly as "family members" below) has the potential to increase engagement and reduce the negative psychologic sequelae of such hospitalizations. Currently, little is known about patient preferences for information sharing with a designated family member in the ICU. We sought to understand the information-sharing preferences of former ICU patients and their family members and to identify predictors of information-sharing preferences.