Open AccessFamily functioning among adolescents with narcolepsy
Author(s) -
Arpita Parmar,
E. Ann Yeh,
Daphne J. Korczak,
Shelly K. Weiss,
Zihang Lu,
Allison Zweerink,
Alène Toulany,
Brian J. Murray,
Indra Narang
Publication year - 2019
Publication title -
paediatrics and child health
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.55
H-Index - 43
eISSN - 1918-1485
pISSN - 1205-7088
DOI - 10.1093/pch/pxy192
Subject(s) - narcolepsy , cohort , medicine , worry , quality of life (healthcare) , chronic pain , psychiatry , clinical psychology , psychology , anxiety , neurology , nursing
Narcolepsy is a sleep disorder with no cure with onset typically during adolescence. Caring for an adolescent with a lifelong medical condition can negatively impact family structure, cohesion, relationships, and overall functioning. The primary objective of this study was to evaluate family functioning in a cohort of adolescents with narcolepsy using the PedsQL Family Impact Module. The secondary objective was to compare family functioning in adolescents with narcolepsy to adolescents with chronic pain based on published data.