Open AccessSystematic review: measurement properties of patient-reported outcome measures evaluated with childhood brain tumor survivors or other acquired brain injury
Author(s) -
Kim Bull,
Samantha Hornsey,
Colin Kennedy,
AnneSophie Darlington,
Martha A. Grootenhuis,
Darren Hargrave,
Christina Liossi,
Jonathan Shepherd,
David Walker,
Christopher Morris
Publication year - 2019
Publication title -
neuro-oncology practice
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.666
H-Index - 14
eISSN - 2054-2585
pISSN - 2054-2577
DOI - 10.1093/nop/npz064
Subject(s) - traumatic brain injury , brain tumor , medicine , acquired brain injury , psychology , clinical psychology , psychiatry , physical therapy , rehabilitation
Survivors of childhood brain tumors or other acquired brain injury (ABI) are at risk of poor health-related quality of life (HRQoL); its valid and reliable assessment is essential to evaluate the effect of their illness on their lives. The aim of this review was to critically appraise psychometric properties of patient-reported outcome measures (PROMs) of HRQoL for these children, to be able to make informed decisions about the most suitable PROM for use in clinical practice.