Open AccessAllocation of Treatment Responsibility and Adherence to Hydroxyurea Among Adolescents With Sickle Cell Disease
Author(s) -
Susan Creary,
Avani C. Modi,
Joseph Stanek,
Deena J. Chisolm,
Sarah H. OʼBrien,
Cara Nwankwo,
Lori E. Crosby
Publication year - 2019
Publication title -
journal of pediatric psychology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.054
H-Index - 121
eISSN - 1465-735X
pISSN - 0146-8693
DOI - 10.1093/jpepsy/jsz061
Subject(s) - medicine , medical prescription , disease , medication adherence , medical record , young adult , family medicine , psychiatry , clinical psychology , gerontology , nursing
Adolescents with sickle cell disease (SCD) are at increased risk for complications. Hydroxyurea is a medication that can ameliorate risk but to benefit, adolescents must adhere to treatment. Study aims were to describe how adolescents and their caregivers decided who was responsible for treatment tasks, to describe adolescents' and caregivers' responsibility for these tasks, and to examine if hydroxyurea adherence was associated with younger adolescent age, less discrepancy between adolescents' and caregivers' reports of adolescent responsibility, and higher caregiver involvement.