Open AccessInternet-Based Survivorship Care Plans for Adult Survivors of Childhood Cancer: A Pilot Study
Author(s) -
Dava Szalda,
Lisa A. Schwartz,
Marilyn M. Schapira,
Linda A. Jacobs,
Esther Kim,
Carolyn Vachani,
James M. Metz,
Christine HillKayser
Publication year - 2016
Publication title -
journal of adolescent and young adult oncology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.743
H-Index - 20
eISSN - 2156-535X
pISSN - 2156-5333
DOI - 10.1089/jayao.2016.0026
Subject(s) - survivorship curve , medicine , the internet , childhood cancer , cancer survivor , young adult , cancer , health care , cancer survivorship , family medicine , gerontology , world wide web , computer science , economics , economic growth
Survivorship care plans (SCPs) provide health information to survivors and providers. An existing internet-based SCP generator was adapted to incorporate guidelines for adult survivors of pediatric leukemia and lymphoma. Survivors created an SCP online and completed a survey. Survivors (N = 30) took an average of 10 minutes to complete the SCP. The majority (95%) found the platform easy to use, would recommend it to others (85%), and intended to share SCP with their healthcare team (90%). Thus, a patient-generated internet-based SCP for adult survivors of childhood cancer may be a feasible tool to improve consistency of information for survivors and their providers.