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Abstracts of the 8th Meeting of the Italian Peripheral Nerve Study Group: 19
Author(s) -
Padua L,
Sche A,
Nobile Orazio E
Publication year - 2003
Publication title -
journal of the peripheral nervous system
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1
H-Index - 67
eISSN - 1529-8027
pISSN - 1085-9489
DOI - 10.1046/j.1529-8027.2003.00019.x
Subject(s) - medicine , quality of life (healthcare) , polyneuropathy , standardization , dimension (graph theory) , pediatrics , family medicine , nursing , pure mathematics , law , mathematics , political science
*Software NEUROPA based on the “consensus” Committee for standardization of measurements on polyneuropathy of the Gruppo di Studio Sistema Nervoso Periferico (Antonimi G, Cavaletti G, Di Iorio G Fabrizi G, Galardi G, Gemignani F, Giannini F, Ghirlanda P, Lori S, Nobile‐Orazio E, Padua L, Scarpini E, Schenone A, Tonali P, Uncini A, Vita G). Kind of study: survey prospective multicentric multidimensional study. Aim of the study: to evaluate the characteristic (including disability and Health Related Quality of life ‐ HRQoL) a representative sample of patients with suspected, or diagnosed, polyneuropathy (or multineuropathy) admitted in neurological centers. The HRQoL dimension of the study was developed with the collaboration of the Quality of Life Study group of the Italian Neurological Society. Timing: The period of enrollment started on 1‐10‐02 e will end on 30‐01‐03. Acquired data: Besides clinical data we acquire data on the diagnostic pathway the patients have done, disability, HRQoL. All the data are monthly sent to the Department of Neuroscience of Università Cattolica where statistical analysis will be performed. Conclusion: The acquired data will provide information on 1) the frequency of the different type of disease we have to study in the different kind of centers; 2) the clinical picture and the actual involvement in daily activity of this kind of patients and therefore the priority we have to give them; 3) the necessities of the neurological centers where this kind of patients are admitted and therefore what we have to requests to the national and regional sanitary service to better study this kind of patients and to optimize the diagnostic and therapeutic pathway. # Antonini G, Bacci A, Cardinali P, Cavalletti G, Cocito D, Corbo, Di Iorio, Fabrizi GM, Fazio R, Galassi G, Gemignani F, Giannini F, Girlanda P, Insola A, Liguori R, Maggio M, Mazzeo A, Messina C, Murasecco D, Nemni R, Nobile Orazio E, Pareyson D, Porazzi D, Quattrini A, Ragno M, Rizzuto N, Romano M, Santoro L, Sartucci F, Sabatelli M, Schenone A, Sghirlanzoni, Siciliano G, Villacara A, Vita G.