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Young people with spina bifida: Transfer from paediatric to adult health care
Author(s) -
SAWYER SM,
COLLINS N,
BRYAN D,
BROWN D,
HOPE MA,
BOWES G
Publication year - 1998
Publication title -
journal of paediatrics and child health
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.631
H-Index - 76
eISSN - 1440-1754
pISSN - 1034-4810
DOI - 10.1046/j.1440-1754.1998.00265.x
Subject(s) - spina bifida , medicine , multidisciplinary approach , health care , young adult , service (business) , pediatrics , gerontology , social science , economy , sociology , economics , economic growth
An expectation of health care for young people with disability is that quality coordinated care continues to be available as they pass from the paediatric to the adult health care system. While individual clinicians provide this service well, the widespread absence of coordinated multidisciplinary care for young people with spina bifida in the adult health care system is a major deficiency. This paper describes the planning and implementation that underpinned the transfer of 10 young people with spina bifida from a paediatric to an adult service. The range of structural, financial and ‘cultural’ barriers that need to be overcome before patients can be successfully transferred is highlighted; lessons learned from this model may serve to facilitate the development of other transfer services.