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Evaluating a community nursing service: listening to the voices of clients with an intellectual disability and/or their proxies
Author(s) -
Koch Tina,
Marks June,
Tooke Elaine
Publication year - 2001
Publication title -
journal of clinical nursing
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.94
H-Index - 102
eISSN - 1365-2702
pISSN - 0962-1067
DOI - 10.1046/j.1365-2702.2001.00503.x
Subject(s) - active listening , nursing , normalization (sociology) , service (business) , inclusion (mineral) , psychology , nurse education , medical education , medicine , sociology , social psychology , economy , communication , anthropology , economics
• The aim of this study was to evaluate a specialist nursing service programme for people with an intellectual disability residing in the community. It is important to correct the imbalance in the literature that has neglected the voices of the clients themselves or denied expression by their proxies. • The aim of the study was to gain a better understanding of matters of importance for clients and their families and to involve them in the evaluation of a service that directly affects their care. • Only three clients were able to participate; however, 17 parents (next of kin) agreed to be interviewed. • In‐depth interviews were audio‐taped, transcribed and analysed relating to the questions asked and were checked against the domains of the nursing practice in the disability area: continuity of care, advanced nursing practice, education and credentialling, personal and professional attributes, primary health care, and normalization. • The findings confirm the high regard in which the programme is held. Service evaluation is crucial in providing evidence for programme funders. The favourable outcome of this evaluation meant that the programme gained funding for another few years.