Premium
Hearing the voices of children with chronic illness
Author(s) -
Sartain Samantha A.,
Clarke Charlotte L.,
Heyman R.
Publication year - 2000
Publication title -
journal of advanced nursing
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.948
H-Index - 155
eISSN - 1365-2648
pISSN - 0309-2402
DOI - 10.1046/j.1365-2648.2000.t01-1-01556.x
Subject(s) - disadvantaged , grounded theory , interpreter , qualitative research , data collection , psychology , developmental psychology , medicine , nursing , sociology , social science , political science , computer science , law , programming language
Hearing the voices of children with chronic illness This qualitative study has aimed to explore children’s, parents’ and health professionals’ experience of childhood chronic illness. Seven families and their professional carers participated in semistrucured interviews. The children's interviews were augmented with a ‘drawing’ technique. A grounded theory approach facilitated data collection and analysis. This paper debates the perceived passivity of the voice of children in health care and research and illustrates data collection methods that seek to give children and other disadvantaged groups a voice. The children who participated in this study are described as competent interpreters of their world.