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Views and Experiences of People with Intellectual Disabilities and Their Families. (2) The Family Perspective
Author(s) -
Grant Gordon,
Ramcharan Paul
Publication year - 2001
Publication title -
journal of applied research in intellectual disabilities
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.056
H-Index - 63
eISSN - 1468-3148
pISSN - 1360-2322
DOI - 10.1046/j.13602322.2001.00077.x
Subject(s) - receipt , perspective (graphical) , scope (computer science) , intellectual disability , learning disability , relation (database) , social care , psychology , social model of disability , public relations , nursing , medicine , developmental psychology , political science , psychiatry , artificial intelligence , computer science , database , world wide web , programming language
The aim of the present paper is to distil findings from research into the views and experiences of families of people with intellectual disabilities (IDs). It draws from the authors' report on the views and experiences of users and carers, the DoH Research Initiative on Learning Disability: Proposal for a Research Review on the Views and Experiences of Users and Carers , which was commissioned by the Department of Health, and was intended to inform some of the thinking behind Valuing People and the associated research programme. The present paper traces the development and scope of research on family carers in relation to the personal and psychological experience of care as well as in relation to receipt of services. Theoretical and methodological gaps in the literature are outlined. Social systems theory is proposed as a means of addressing the requirements of a future research agenda about family care.