Open AccessUsing PROMIS® to create clinically meaningful profiles of nephrotic syndrome patients.
Author(s) -
Jonathan P. Troost,
Debbie S. Gipson,
Noelle E. Carlozzi,
Bryce B. Reeve,
Patrick H. Nachman,
Rasheed Gbadegesin,
Jichuan Wang,
Frank Modersitzki,
Susan F. Massengill,
John D. Mahan,
Yang Liu,
Howard Trachtman,
Emily Herreshoff,
Darren A. DeWalt,
David T. Selewski
Publication year - 2019
Publication title -
health psychology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.548
H-Index - 164
eISSN - 1930-7810
pISSN - 0278-6133
DOI - 10.1037/hea0000679
Subject(s) - nephrotic syndrome , medicine , medline , psychology , biology , biochemistry
Nephrotic syndrome (NS) is a kidney disease known to adversely impact health-related quality of life (HRQOL). Patient-reported outcome (PRO) measures are commonly used to characterize HRQOL and the patient disease experience. This study aims to improve the interpretability and clinical utility of the Patient-Reported Outcomes Measurement Information System® (PROMIS®) by identifying distinct meaningful HRQOL profiles in children and adults with NS.