Open AccessHealth-related quality of life in parents and partners of people with type 1 diabetes: Development and validation of type 1 diabetes and life (T1DAL) measures.
Author(s) -
Marisa E. Hilliard,
Charles G. Minard,
David G. Marrero,
Maartje de Wit,
Stephanie N. DuBose,
Alandra Verdejo,
Sarah S. Jaser,
Davida F. Kruger,
Roshanak Monzavi,
Viral N. Shah,
R. Paul Wadwa,
Ruth S. Weinstock,
Debbe Thompson,
Viena T. Cao,
Barbara J. Anderson
Publication year - 2021
Publication title -
families systems and health
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.491
H-Index - 47
eISSN - 1939-0602
pISSN - 1091-7527
DOI - 10.1037/fsh0000507
Subject(s) - debriefing , type 1 diabetes , quality of life (healthcare) , psychology , clinical psychology , reliability (semiconductor) , construct validity , psychometrics , type 2 diabetes , gerontology , internal consistency , medicine , developmental psychology , diabetes mellitus , social psychology , power (physics) , physics , quantum mechanics , psychotherapist , endocrinology
Despite the significant impact of type 1 diabetes (T1D) on family, few instruments are available to assess health-related quality of life (HRQOL) among family members of people with T1D. This study aimed to develop and evaluate the psychometric properties of new measures of diabetes-specific HRQOL for parents and partners of people with T1D. We report on the multistep development and validation process for the self-report Type 1 Diabetes and Life (T1DAL) measures, with versions for parents of youth age <8, 8-11, 12-17, and 18-25 years, and for partners of people age ≥18 years with T1D.