Open AccessParent experience with volunteers and support groups in a multidisciplinary difference of sex development clinic.
Author(s) -
Natalie Nokoff,
Merlin Ariefdjohan,
Sharon H. Travers,
Cindy Buchanan
Publication year - 2020
Publication title -
clinical practice inpediatric psychology/clinical practice in pediatric psychology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.332
H-Index - 15
eISSN - 2169-4834
pISSN - 2169-4826
DOI - 10.1037/cpp0000302
Subject(s) - medicine , family medicine , multidisciplinary approach , session (web analytics) , social science , sociology , world wide web , computer science
Despite recommendations that clinics for children with a difference of sex development (DSD) should include peer support, information on how to provide this support is lacking. We utilized a mixed-methods program evaluation to evaluate family satisfaction with our clinic-based volunteers (who either have DSD themselves or are a parent of a child with DSD) and to understand the experience of these volunteers.