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A Patient's Perspective on Genetic Counseling and Predictive Testing for Alzheimer's Disease
Author(s) -
Neilson Jane
Publication year - 1999
Publication title -
journal of genetic counseling
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.867
H-Index - 52
eISSN - 1573-3599
pISSN - 1059-7700
DOI - 10.1023/a:1022882503673
Subject(s) - genetic counseling , perspective (graphical) , disease , genetic testing , predictive testing , family history , medicine , public health , psychology , clinical psychology , pathology , genetics , computer science , radiology , artificial intelligence , biology
The availability of genetic testing for Alzheimer's disease is anticipated to be widespread in the future. As an individual at risk with a family history of Alzheimer's disease, I discuss why I sought predictive tests and how I would use the information from such tests. I relay what I learned in my genetic counseling session, my response to the counseling process, and steps I have since taken. I discuss life planning, psychological and fear of discrimination issues from a patient's perspective.