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Development of an Interactive Decision Aid for Female BRCA1/BRCA2 Carriers
Author(s) -
Kaufman Elizabeth M.,
Peshkin Beth N.,
Lawrence William F.,
Shelby Rebecca,
Isaacs Claudine,
Brown Karen,
Rispoli Jessica,
O'Neill Suzanne,
Hurley Karen,
DeMarco Tiffani,
Brogan Barbara,
Grumet Sherry,
Jandorf Lina,
McKenna Kristine,
Valdimarsdottir Heiddis,
Schwartz Marc D.
Publication year - 2003
Publication title -
journal of genetic counseling
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.867
H-Index - 52
eISSN - 1573-3599
pISSN - 1059-7700
DOI - 10.1023/a:1022698112236
Subject(s) - breast cancer , medicine , decision aids , population , distress , intervention (counseling) , comprehension , randomized controlled trial , quality of life (healthcare) , family medicine , cancer , nursing , clinical psychology , surgery , alternative medicine , pathology , environmental health , computer science , programming language
Shared decision making between patients and providers is becoming increasingly common, particularly when there is no clear preferred course of action. As a result, decision aids are being adopted with growing frequency and have been applied to many medical decision‐making issues. One such issue where there is uncertainty is breast cancer risk management among BRCA1/BRCA2 carriers. We present the development of a CD‐ROM decision aid to facilitate risk management decision making in this population. Our decision aid was developed with the intention of providing it through a randomized clinical trial. The CD‐ROM is a multimedia, interactive intervention which provides information about breast cancer, risks associated with BRCA1 and BRCA2 mutations, risk management options for hereditary breast cancer, and a breast cancer risk management decision aid. The goal of this CD‐ROM, offered as an adjunctive intervention, is to reduce decisional conflict and psychological distress and improve comprehension of risk information, decisional satisfaction, medical adherence, and quality of life for this population of women at increased risk for breast cancer.