Open AccessDevelopment of an advance care planning booklet in Taiwan
Author(s) -
Shu Chen Wang,
Chih Jung Chang,
Sheng–Yu Fan,
Ying Wei Wang,
ShangTzen Chang,
HueiChuan Sung
Publication year - 2015
Publication title -
tzu-chi medical journal/cí-jì yīxué
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.343
H-Index - 15
eISSN - 2223-8956
pISSN - 1016-3190
DOI - 10.1016/j.tcmj.2015.07.003
Subject(s) - advance care planning , palliative care , medicine , end of life care , focus group , nursing , health care , family medicine , marketing , economics , business , economic growth
ObjectivesAdvance care planning (ACP) is the process of discussing the wishes of people regarding end-of-life care and other related medical decisions. The aims of this study were to develop an ACP booklet in Taiwan and to identify relevant ACP issues.Materials and methodsA three-stage research design was used. First, potential items were collected from the literature and were modified based on clinical situations and Taiwanese culture. Next, experts in palliative care evaluated the content validity of the items. Finally, healthy participants reviewed the ACP booklet and then discussed their experiences in focus groups.ResultsThe significant issues identified discussing ACP included life story, current health status and habits, life-threatening conditions and suffering, medical decisions about the end-of-life care, and a number of other items. The provision of comprehensive information about the pros and cons of specific medical procedures and of palliative care was identified as important.ConclusionAn ACP booklet facilitates discussion and decision-making related to end-of-life care. Furthermore, the present findings indicated that, when carrying out an ACP discussion, not only are the preferences and values of people important, but also factors related to their culture