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P1‐552: INCREASING INTEREST IN RESEARCH PARTICIPATION: EFFECTIVENESS OF A VIDEO AND PEER ROLE MODEL INTERVENTION WITH MINORITY SENIORS
Author(s) -
Sewell Margaret,
Neugroschl Judith,
Umpierre Mari,
Zhu Carolyn W.,
Velasco Nelly,
Chin Shehan,
Gonzalez Sabrina,
Silva Gabriela,
Bayne Mitchell,
Sano Mary
Publication year - 2019
Publication title -
alzheimer's and dementia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 6.713
H-Index - 118
eISSN - 1552-5279
pISSN - 1552-5260
DOI - 10.1016/j.jalz.2019.06.1157
Subject(s) - intervention (counseling) , ethnic group , session (web analytics) , psychology , gerontology , dementia , medicine , medical education , nursing , disease , political science , advertising , pathology , law , business
center talks, using the 7-item Research Attitudes Questionnaire (RAQ). On items relating to trust, safety, and personal responsibility to help research, a significant minority (38–48%) responded neutrally/negatively. We compared this group’s responses to a new group in the same community. The new talks included a video about research participation co-produced by ADRC faculty and seniors in our Community Advisory Board (CAB). Methods:ADRC and CAB members co-wrote the script. CAB members acted in a 2-minute video “Memory research; Is it right for me?” The video, in English with some Spanish, featured three elderly minority women conversing about research participation. It was presented with the CAB co-leading a Q/A session. Attitude was measured by the 7-item RAQ (5-point Likert Scale). Results: 192 attendees across 19 presentations completed the RAQ. Mean age was 74 (82% female). 57%were Latino and 43% non-Hispanic Blacks. Education levels were 27% < 12 years, 38% high school graduates, 23% some college, and 13% >1⁄4 16 years. Among our Latino attendees, 72% had< 12 years of education, similar to 2014. Despite differences in educational levels, responses indicated that, compared to our previous published results, attendees in the video/peer group expressed more trust in research safety (3.8 vs 3.4; p<0.0002),confidentiality (4.1 vs 3.7; p<0.005), protection of subject’s interests(3.9 vs 3.5; p<0.0073) and that everyone has some responsibility to volunteer in research (3.9 vs 3.6; p<0.0027). RAQ responses among Latinos, where education was equivalent, were similar to the whole group. Conclusions: The video/peer group expressed more trust and sense of responsibility regarding research participation compared to a historical group. This may be because of identification with the CAB who were in the video and Q/A. Using peers as trusted advisors may change attitudes and increase comfort and personal responsibility concerning research participation.