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P1‐547: MAILING OUTREACH FOR PARTICIPATION IN COGNITIVE IMPAIRMENT AND ALZHEIMER'S DISEASE RESEARCH
Author(s) -
Pun Kelly,
Zhu Carolyn W.,
Kinsella Michael T.,
Li Clara,
Grossman Hillel,
Neugroschl Judith,
Sewell Margaret,
Velasco Nelly,
Bayus Jason,
Sano Mary
Publication year - 2019
Publication title -
alzheimer's and dementia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 6.713
H-Index - 118
eISSN - 1552-5279
pISSN - 1552-5260
DOI - 10.1016/j.jalz.2019.06.1152
Subject(s) - medicine , phone , family medicine , dementia , clinical trial , disease , psychiatry , philosophy , linguistics
and by 2060 will represent 36% of the oldest-old. Yet there is a dearth of information on the epidemiology of mild cognitive impairment (MCI) and dementia in the oldest-old, particularly in non-whites. LifeAfter90 was established to investigate lifecourse determinants of dementia, MCI, and cognitive decline in a racially and ethnically diverse, cohort of 90+ year old Kaiser Permanente Northern California (KPNC) members (recruitment goal of N1⁄4800).Methods: Recruitment is ongoing and beganwith a mailed invitation to participate to long-term KPNC members. To date, 1818 letters of a total of 16,356 have been mailed; 20% have completed a baseline visit, 28% are in active recruitment, 8% refused by postcard, 31% refused by phone, 2% died, 5%were ineligible, and 6% were unreachable. Differences in recruitment rates and refusal method were evaluated by race/ethnicity and age. Results: To date, 361 baseline visits are complete; mean age 92.9 (range: 88-108), 24% Black, 37% White, 16% Asian, 11% Latino, and 12%Multiracial/Other. Overall, 96% of participants were seen in their homes, including 100% of participants aged 100+. Recruitment rates varied by race/ethnicity and were highest amongWhites (54%), followed by Multiracial/Other (32%), Blacks (25%), Latino (24%), and Asian (19%). Recruitment rates varied by age and were highest among 95-99 year olds (33%), followed by 90-94 year olds (30%), and lowest among 100+ year old’s (17%). Compared to Whites, twice as many Asians refused by postcard (13% Asians vs 7% Whites) or were unreachable by phone (8% Asian vs 4% Whites). Blacks and Latinos were more likely to refuse by phone than Whites (26%Whites, 37% Blacks, 35% Latinos). Conclusions: LifeAfter90 is a unique study of people 90 and older where most participants are ethnic minorities. There are differences in a wide range of recruitment, enrollment indicators and refusal method by racial/ethnic groups and age. Despite challenges, we are successfully recruiting a cohort of individuals from a severely understudied group, oldest-old ethnic minorities.