Premium
P1‐590: DEMENTIAS PLATFORM UK (DPUK) DATA PORTAL: FACILITATING DEMENTIAS RESEARCH ON A GLOBAL SCALE
Author(s) -
Orton Christopher,
Gallacher John,
Lyons Ronan A.,
Ford David V.,
Thompson Simon,
Bauermeister Sarah
Publication year - 2018
Publication title -
alzheimer's and dementia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 6.713
H-Index - 118
eISSN - 1552-5279
pISSN - 1552-5260
DOI - 10.1016/j.jalz.2018.06.602
Subject(s) - upload , metadata , computer science , data access , data management , world wide web , data science , data sharing , cohort , database , medicine , alternative medicine , pathology
Forms with the original layout, structure, and format intact. This allowed data collection and immediate storage using portable devices through a wireless internet connection. Formative research based on mock interviews consisted on qualitative data collection on the acceptability, practicality, and feasibility of data collection in three diverse settings and cultures (India, Switzerland, and USA), within volunteers (N1⁄445) with highly diverse demographic characteristics. Results:Data collection was efficient, faster compared to previous 1066 studies, reliable in all settings, and allowed for the automatic, real-time transmission and storage of data. The use of smartphones or tablets was well-received by all subjects, and the interviewers appreciated the convenience provided by the mobility and usability of the portable devices, the ease of use of electronic versions of the questionnaires (which included embedded instructions and hints), and found data entry swift, accurate, stable and secure. Conclusions:This qualitative pilot study demonstrated the good acceptability, efficiency, and accuracy of data collection using an alpha electronic version of the 1066 Short Schedule Dementia Diagnostic Routine in three culturally and geographically diverse low-middle and high-income settings. A cross-cultural validation study is warranted before this innovative tool is used in large scale surveys into dementia occurrence.