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O5‐02‐02: BARRIERS AND ENABLERS TO TIMELY DIAGNOSIS OF DEMENTIA: PATIENTS' AND FAMILIES' POINTS OF VIEW
Author(s) -
Laron Michal,
Mannheim Ittay,
Brodsky Jenny,
Sternberg Shelly,
Zalomonson Svetlana,
Kertesz Diana Plaeucu,
Shefet Daphna
Publication year - 2018
Publication title -
alzheimer's and dementia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 6.713
H-Index - 118
eISSN - 1552-5279
pISSN - 1552-5260
DOI - 10.1016/j.jalz.2018.06.3002
Subject(s) - dementia , medicine , harm , cognition , intervention (counseling) , demographics , informed consent , health care , medical diagnosis , multidisciplinary approach , psychiatry , stigma (botany) , family medicine , disease , psychology , alternative medicine , social psychology , social science , demography , pathology , sociology , economics , economic growth
mind, ASC developed an engagement resource guide which provides a framework for the promotion of well-being, choice, autonomy and open communication, all of which are foundational to the meaningful engagement of persons with dementia. Methods: In 2006 ASC commissioned a study to help identify strategies to promote the active participation of people with early stage dementia in the Society’s policy, research and service delivery. ASC followed up with another study in 2011 to obtain specific recommendations on the steps needed for successful engagement of people with dementia in the work of ASC. Acting on these recommendations, in 2012, ASC formed an advisory group comprised of persons with dementia from across Canada. The group’s mandate was to advise and share their perspectives on how ASC currently engages people with dementia in their work and what needs to be done to make the engagement of people with dementia more meaningful for both them and ASC. Results: The advisory group helped develop an “Ethical Framework on Engaging People with Dementia” which guided ASC’s future work in this area. In addition, with the advisory group’s input a “Meaningful Engagement of People with Dementia: A Resource Guide” was developed. This guide provides tools, resources and strategies to assist organizations in promoting the meaningful engagement of people with dementia. Conclusions: Meaningful engagement provides people with dementia with an opportunity to give input into decisions that directly affect them, which can contribute to a sense of personal worth. In addition, it provides a vital perspective on different issues and promotes communication among people with dementia, Alzheimer Society staff and researchers. The resource guide will help build capacity within organizations to collaboratively address the needs of personswith dementia.