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F5‐04‐02: UNMET NEEDS OF DEMENTIA CAREGIVERS AT HOME
Author(s) -
Samus Quincy M.,
Black Betty E.,
Reuland Melissa,
Hodgson Nancy A.,
Gitlin Laura N.,
Lyketsos Constantine,
Johnston Deirdre
Publication year - 2018
Publication title -
alzheimer's and dementia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 6.713
H-Index - 118
eISSN - 1552-5279
pISSN - 1552-5260
DOI - 10.1016/j.jalz.2018.06.2981
Subject(s) - dementia , family caregivers , medicine , gerontology , needs assessment , power of attorney , disease , nursing , health care , family medicine , psychology , psychiatry , social science , pathology , sociology , economics , economic growth
the COPE CT study, 69% are female, mean (sd) age1⁄462.1 (11.7), 77% White, 17% Black, 55% daughters/in-law, 18% spouses, and 17% sons/in-law. Among the first 83 CGs completing the COPE intervention, 58% reported that taking care of themselves was the biggest challenge, followed by engaging the PWD inmeaningful activities (28%), caring for a PWD who rejects or refuses help (21%), and caring for a PWDwho is worried, fearful, or anxious (16%). The proportion of total challenges reported by these CGs (N1⁄4216) that were “very difficult” was reduced from 60% at the start of the COPE intervention to 4% at the end. Nearly all of these challenges were reduced (75%) or eliminated (21%) by intervention end. Conclusions:CGs in the COPE CT study were most likely to report that dementia care-related challenges they faced pertained to taking care of themselves. The COPE intervention shows preliminary evidence of resolving or reducing most challenges faced by CGs of PWD living at home.