Premium
P3‐635: PROVISION OF GENETIC SAMPLES WITHIN ALZHEIMER'S DISEASE CENTERS: FACTORS ASSOCIATED WITH SAMPLE AVAILABILITY
Author(s) -
Bardach Shoshana H.,
Zhang Xuan,
Abner Erin L.,
Jicha Gregory A.
Publication year - 2018
Publication title -
alzheimer's and dementia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 6.713
H-Index - 118
eISSN - 1552-5279
pISSN - 1552-5260
DOI - 10.1016/j.jalz.2018.06.2002
Subject(s) - ethnic group , disease , cognition , gerontology , demography , race (biology) , medicine , mann–whitney u test , cognitive impairment , psychology , clinical psychology , psychiatry , biology , botany , sociology , anthropology
researcher narrative to "documentary style" to utilize the subjects’ words for primary informing. The "Foreword" identifies the study as a dissertation research project; "Love thy Stranger" provides emotional insight into four family caregivers’ personal Alzheimer’s journey; "Rock n’ Roll to Rocking Chairs" shows the prevalence for becoming a caregiver as the Baby Boomers age into impairment; "Behind the Curtain" explains the research methodology, framework, case study limits and outliers; "Research Reflections" recaps important issues with both researcher and caregiver commentary; and "Endnotes" includes definitions, all participant citations and additional explanations or exhibits. Conclusions: The data from this inverted case-study should provide a non-academic person with an emotional connection to those who have been, or may become, a caregiver to a cognitively impaired family member–then alert them of the impending wave of increased Alzheimer’s patients and the corresponding expansion of stakeholders–while also encouraging individuals take action ahead of encountering the phenomenon themselves.