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P2‐650: ASSESSING PREPAREDNESS FOR DEATH AND GRIEF IN BEREAVED AND SOON‐TO‐BE BEREAVED DEMENTIA FAMILY CAREGIVERS
Author(s) -
Supiano Katherine P.,
Luptak Marilyn,
Andersen Troy C.,
Bey Cynthia,
Jo Yeon Jung,
Iacob Eli,
Wong Bob
Publication year - 2018
Publication title -
alzheimer's and dementia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 6.713
H-Index - 118
eISSN - 1552-5279
pISSN - 1552-5260
DOI - 10.1016/j.jalz.2018.06.1346
Subject(s) - grief , dementia , preparedness , complicated grief , coping (psychology) , clinical psychology , medicine , anxiety , family caregivers , psychiatry , disenfranchised grief , psychology , depression (economics) , traumatic grief , gerontology , disease , macroeconomics , political science , law , economics
selected by purposive sampling, 11 subjects who met criteria (6 men and 5 women) were interviewed, average age 70 years old (64-82). Participants were all referred by Neurologist at the Neurology Unit, Hospital del Salvador, Santiago, Chile. Average time of diagnostic disclosure was 12 months (1-36). None of the participants had received psychosocial support after disclosure. Five sub-themes of content were produced, describing relevant features of the lived experience after the diagnosis of Alzheimer’s disease: the enabling role of families, unsatisfied needs of information, constant anticipation of disease progression, ambivalence to share diagnosis, and strategies for adaptation. Conclusions: People with Alzheimer’s disease face a constant process of adaptation after diagnosis, unfolding self-determined strategies. For effective implementation of early diagnosis and management, psychosocial strategies supporting peoplewith early-stage dementiamay consider the needs of information, strengthening the role of family, and guiding how people disclosure diagnosis with others. References (1) Maki Y, Yamaguchi H. Early detection of dementia in the community under a community-based integrated care system. Geriatr Gerontol Int. 2014; 14 (S2):2–10. (2) G orska S, Forsyth K, Maciver D. Living With Dementia: A Meta-synthesis of Qualitative Research on the Lived Experience. Gerontologist. 2017;0(0):gnw195.