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[P4–539]: PARTICIPATING IN UNDERGRADUATE HEALTHCARE PROFESSIONAL DEMENTIA EDUCATION: THE EXPERIENCE OF PEOPLE WITH DEMENTIA AND THEIR CARERS
Author(s) -
Daley Stephanie,
Cashin Zoe,
Miller Miriam,
Hughes Leila,
Hebditch Molly,
Wright Juliet,
Grosvenor Wendy,
Banerjee Sube
Publication year - 2017
Publication title -
alzheimer's and dementia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 6.713
H-Index - 118
eISSN - 1552-5279
pISSN - 1552-5260
DOI - 10.1016/j.jalz.2017.07.701
Subject(s) - dementia , thematic analysis , qualitative property , psychology , medical education , qualitative research , nursing , medicine , disease , sociology , social science , pathology , machine learning , computer science
Background:The Neuroscience Group of Antioquia (GNA) developed a Home Health program to assist patients and families with neurodegenerative diseases whose health status does not allow them to receive care at the GNA center. It is a scheduled visit, free of charge and performed by psychologists, nurses and physicians who offer comprehensive care, education in caretaking and good interactions among the healthcare team, patient, family and social environment.Methods:A statistical analysis was performed, and it allowed us to establish central tendency measures for the variables: sex, geographic location, housing, reason for consultation, diagnosis, stage of the disease, behavioral problems, type of caregiver and postmortem brain donation.Results:A total of 70 patients were visited during 2016: 68.6% were female, 84.3% were living with their relatives and 15.7% in nursing homes , 58.6% were residing in Medellin and 41.4% in other municipalities of Colombia. Among the people who assumed the role of caregiver 27.1% were the patient’s siblings and 24.3% the patient’s children. The diagnoses were: genetic Alzheimer’s Disease due to PSEN1 E280A mutation (70.4%), sporadic Alzheimer’s disease (14.1%) and other neurodegenerative diseases (7%) such as Parkinson’s Disease, Dystonia, Lateral Amyotrophic Sclerosis and Huntington’s Disease. The main reasons for consultation were tonic-clonic seizures and/or myoclonus (28.5%), behavioral problems (65.7%), and severe stage of dementia (96.7%). Of all deceased patients in 2016, 75% donated their brain to the “Neurobanco” of GNA – only brain bank in Colombia. Conclusions:The Home Health program had bilateral benefits; it allowed patients and their families to improve their quality of life, and families of deceased patients helped science advancement through brain donation. The program also improved the participation in different research projects, including clinical trials and tissue donation.