Premium
[P1–544]: THE JOURNEY WITH DEMENTIA FROM THE PERSPECTIVE OF BANGLADESHI FAMILY CAREGIVERS IN ENGLAND
Author(s) -
Hossain Muhammad Zakir,
Dewey Ann,
Crossland John,
Stores Rebecca,
Khan Shipa Ahmed
Publication year - 2017
Publication title -
alzheimer's and dementia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 6.713
H-Index - 118
eISSN - 1552-5279
pISSN - 1552-5260
DOI - 10.1016/j.jalz.2017.06.560
Subject(s) - dementia , thematic analysis , family caregivers , qualitative research , medicine , immigration , psychology , nursing , sociology , disease , social science , pathology , archaeology , history
of insanity” and “Alzheimer’s disease results from a curse”. We compared responses between persons living in rural and urban settings in Mexico and the U.S. settings using chi-square tests. Results:Urban participants (n 1⁄4 31) had higher levels of education (14.7 vs. 10.6 years, p<0.05), and a higher mean age (41.5 vs. 35.6, p<0.05) relative to rural participants (n 1⁄4 79). Rural participants were significantly more likely to endorse that AD can result from a curse (23.5% vs. 0%, p<.0.01), is a form of insanity (45.6% vs 3.8%, p<0.01), can be caused by traumatic life experiences (19.2% vs. 0%, p<0.01), and that AD can arise as “God’s will” (21.4% vs. 4.2%, p<0.05). Conclusions: In order to ethically conduct ADAD prevention studies, it is critical that potential participants are educated regarding the biological nature of the disease and the potential options for medical interventions. However, our study shows that misconceptions and myths about AD are prevalent, particularly in rural Mexico. Families at-risk for AD need additional education regarding AD in order to understand the potential impact of AD on their lives and inform decisions regarding research participation.