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[P4–380]: COMPUTER VISION ANALYSIS FOR BEHAVIOR ANALYSIS OF PEOPLE WITH DEMENTIA
Author(s) -
Konig Alexandra,
Crispim Junior Carlos Fernando,
Karakostas Anastasios,
Bremond Francois,
Lazarou Ioulietta,
Kompatsiaris Ioannis,
Tsolaki Magda,
Robert Philippe
Publication year - 2017
Publication title -
alzheimer's and dementia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 6.713
H-Index - 118
eISSN - 1552-5279
pISSN - 1552-5260
DOI - 10.1016/j.jalz.2017.06.2251
Subject(s) - usability , dementia , mood , autonomy , activities of daily living , psychological intervention , medicine , psychology , applied psychology , computer science , human–computer interaction , clinical psychology , nursing , psychiatry , disease , pathology , political science , law
enhance dementias data science and experimental research by facilitating access to high quality data and explore the possibility of recruiting well-characterised, data-rich participants to further research. DPUK has the potential to affect existing cohorts and their participants’ experience of dementias research, in particular around governance, data use and extended research participation. A dedicated ELSI workgroup conducted a study of ethical and social implications of the DPUK, with attention to the experiences, views and expectations of participants within cohort studies. Methods: Participant work was developed using a grounded theory approach as part of a four-phase cross-cohort qualitative study on the ethical and social implications of the development of DPUK. Six focus groups were conducted with members of three DPUK participating cohorts in England and Scotland. Participants discussed six research scenarios: three based on data science, and three based on experimental research. Group sessions were followed by face to face in-depth interviews on experiences and expectations of research. Results: Participants reacted positively to projects on data sharing and re-contact for further research involvement. However, there were specific concerns around the involvement of commercial research partners and study intensity. Willingness to be re-contacted for research did not correspond directly with willingness to take part in studies, where therewas a more diverse range of responses. The freedom to refuse involvement was central to the acceptability of re-contact, however, participants self-identified as highly willing to consider participating. Their motivation to participate in further research related to themes such as social responsibility, cohort trust and commitment, altruism, health anxiety, and improved personal and familial access to health care. Conclusions: Participant’s views on participating in future dementia research are diverse and situated within wider social contexts. Participants value attempts to enhance UK dementia research, and the opportunity to express their views on these developments. Incorporating participant perspectives into research policy and practice can contribute to ensuring social acceptability and accountability.