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[P2–506]: EXPLORING THE LIVED EXPERIENCE OF THE INDIVIDUAL OF BLACK ETHNICITY LIVING WITH DEMENTIA: A PHENOMENOLOGICAL STUDY
Author(s) -
Mawaka Tiritega Perfect
Publication year - 2017
Publication title -
alzheimer's and dementia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 6.713
H-Index - 118
eISSN - 1552-5279
pISSN - 1552-5260
DOI - 10.1016/j.jalz.2017.06.1163
Subject(s) - dementia , ethnic group , indigenous , gerontology , interpretative phenomenological analysis , lived experience , thematic analysis , psychology , stigma (botany) , population , medicine , disease , qualitative research , sociology , psychiatry , psychotherapist , social science , anthropology , ecology , environmental health , pathology , biology
Background:Due to the increasing prevalence of Mild Cognitive Impairment (MCI) as an early indicator of ADRD and the unique social, financial, and quality of life considerations that this population provides, a re-examination of patient priorities in healthcare decision-making is needed. This study seeks to identify relevant and important concepts in patient care as well as alterations in rates of disease progression by integrating clinical scales with in-depth qualitative interviewing of dyads of individuals caregivers and their partners with MCI. Methods: Indepth, key informant interviews were conducted with dyads of caregivers and their partners with MCI. Our team also used the FAST and QOL-AD scale to evaluate both functional and quality of life measures from both the caregiver and care partners perspective. Qualitative interviews were transcribed verbatim and coded for relevant care decisions and concepts that were important to the caregiver and care recipient. Results:Caregivers rated FAST stages as more progressed than their care recipient partners, but quality of life better than their care recipient partners. Concepts that are most important to caregivers included: advocacy for their loved one, family dynamics and having a support network for assistance, whereas care recipients expressed a need to understand their own reaction and get a diagnosis. Conclusions:The differences in stage identification between caregiver and care recipient has implications in clinical care, as well as in the identification of interventions that may be successful for an individual with MCI. Person-centered care, often reliant in ADRD on the caregiver, may need to shift to a focus on an individual with MCI in their early stages dependent on their impression of successful outcomes in care management.